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Remi belle

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As long as she continues to do well they will move her over to a conventional ventilator maybe as soon as tomorrow.

Once she is on the conventional vent and stable they will consult with the surgeons about putting GI tube in for feeding!

Tomorrow they will be doing another scan of her brain to see how the bleeding had changed over the course of a week.

Overall great news for Little Remi today. We will be praying that the bleeding in her brain has gotten better, that she can move over to the conventional vent, and that she will be stable enough to go into surgery for her feeding tube!

They are switching Remi over to the conventional ventilator today. Other news with Remi, her urine output did drop overnight.

She is still on the half dose of steroids, and her blood pressure is doing much better. The Doctor examined her this morning and said she looks and feels good, and her Kidney functions are good.

They are going to give her more fluids and see if that help to regulate her…. During round the Doctors also reviewed her brain scan, they said that it was about the same as last week with maybe slightly more bleeding.

The Doctor today said she has no concerns with the scan today and they will continue to monitor the bleeding…. We also got a chance to talk to the surgeons today.

They said that they would really like to wait till she is grams before doing any type of surgery on her she is currently grams.

The doctors are wanting it sooner so that they can have a feeding tube placed. The Doctors said they will continue to talk with the surgeons until both can agree upon a suitable weight and time period.

Overall, we are just so excited to hold our little girl for the first time! First kangaroo!!!! The Doctors are going to bring in a Kidney doctor to look at her before changing any of her fluids and meds again.

Meaning she is letting it do all the work and not really breathing on her own. The Docs are going to brainstorm alternative vent options for her.

Praying that the Lord touches her and allows her to regulate her Urine output, also praying that we can continue to kangaroo her with whatever they change to the vent.

She started to have some good urine output yesterday and today. After the Doctors consulted with the Kidney specialist he believes blood flow may not be consistent in her kidneys, or may have dropped at one point.

Her Kidneys have grown though which is a very positive sign. They are going to keep her on the steroids for now, up her fluids, and monitor her a lot!

Our prayer for today is that she would remain stable with her urine output, and that she would continue to grow and heal!

Thank you father God for blessing Porshia and I with this beautiful little masterpiece!!!! She continues to have good output.

The doctors are going to keep pumping her with extra fluids to make sure they are replacing everything she is peeing out now She is getting a lot of secretions now, and with her esophagus issues they have no where to go.

They are going to stop doing oral care which cause more secretions Praising God for all of this good news today!

Knowing in the good times and bad he is in control! Becoming very touchy when the nurse would go in her bed. We are currently not allowed to kangaroo her because of her touchy-ness.

Being proactive the doctors began her on a general antibiotic Incase of infection. After drawing blood they saw her hemoglobin was low.

So they are now giving her a blood transfusions. Hopefully that will help Remi with her touchy-ness. Remi is back on track with her urine output.

The doctors are also going to change some of her vent setting today and see how much she can really breathe on her own.

So the doctors are going to brainstorm alternatives, or Remi would have to make a bigger breathing step than the usually make. I know that the Lord continues to be in this situation at all times, and there is no doubt in my mind that the Lord will heal little Remi!!!

Remi continues to have lots and lots of urine output. They are going to start slowly taking her off the steroids, and see how she reacts to that.

As well as reduce that amount of assisted breaths she gets on the ventilator. They will slowly reduce the amount of assistance she gets training her to breathe more on her own so that we can eventually take the breathing tube completely out!

The doctors are still monitoring her output and fluids very closely. Remi did very well with the lower vent setting yesterday, and they are going to lower them again today.

We are praising Jesus for bringing us this far, and continuing to pray for healing and continued forward progress! The doctors continue to monitor closely her fluids and Urine output, as well as her breathing.

As long as she continues to do well today they plan to move her onto the next breathing step tomorrow. Which would be taking the breathing tube out of her throat and placing a line up to her nose.

Her weight increase last night up to grams. Remi has had good output most of the week, but then stopped urinating again yesterday.

Although she did pick up her urine output in the night. The doctors are very confused as to why she keeps going through these stages of stopping and starting.

All her numbers and labs are great, and there is really no reason at this point to why she stops having output. As a result of her not peeing yesterday she had a lot of excess fluids in her about grams which makes her very touchy and causes her to de-stat a lot.

Today, they are going to leave everything the same, and just continue to watch what she does. A growing concern is the steroids that she is on.

Long term it is not good for her, and they would like to start taking her off of them as soon as possible. Also, praying for no long term side effect from the steroids she on, and that she would gain weight.

There is really not too much the doctors can do until she gets bigger, so that is priority number 1 right now. Everyone is doing good today! We even got our first family selfie!!!!

So by Friday evening they took her out of time out and we were able to Kangaroo her again! She did really well Friday night and all day Saturday Sunday Remi started to become a little more touchy.

They did full lab work on her this morning pre scheduled and during rounds the doctors reviewed all her numbers.

The doctor said all of her numbers look good, and visually she looks good, and is still very active. They are ordering an X-ray just to make sure her breathing tube is in the exact spot they want it.

That being off just a couple of Millimeters can really upset her. They are going to start slowly taking her off the steroids this week, and tomorrow morning they will be doing another ultra sound of her brain to see if the bleeding has subsided or not…Please pray that Remi can come off the steroids and continue to have good urine output, also pray that her brain ultra sound comes back tomorrow with improvement!

Normally the nurses and doctors like to leave her alone as much as possible and really only go in her bed every 6 hours. Last night someone was in her bed doing something to her from about 7pm till 11pm… Because she was still acting touchy the doctors wanted to get blood from her to test her for any infections it came back with no infection.

Normally she bleeds a lot, but last night it took two different nurses and four different sticks to get enough blood for testing… While that was going on Porshia and I noticed that her PICC line her main IV that goes up her arm and into her chest looked a little puffy in her arm.

They did a procedure to put it back in place, but over night the PICC line stopped working…. Today they are going to be placing a new PICC line in a different location.

Other than that no other changes today. Porshia and I are emotionally and physically exhausted. She had very high urine output.

The doctors believe she is finally letting go of the extra fluids they pumped her with last week to get her to start urinating again… They were able to get her new PICC line in with no problems yesterday.

Overall, Remi just looked more comfortable and peaceful yesterday. Praying for continued rest, healing, and good brain scans. With all that was going on we have not been able to hold her for the past two days so we are excited to start kangarooing again today!!!

Thank you Jesus, Family, friends, and even complete strangers for coming along side us and supporting all three of us in this crazy season of life!

Remi is still doing great. She is up to grams!!! She got her last dose of steroids this morning after being weaned off of them.

They will do Labs on Saturday and check her levels after being off the steroids for 48hrs. They did the brain scan this morning.

The results still need to be read by a radiologist, and they will give us a full report after that is done. Overall, not too much will change from yesterday.

We continue to pray that the Lord would bring healing, comfort, and growth to Remi! Up to grams now. The brain scans were read in detail and the bleeding in her brain is subsiding in a positive way, and is not moving into other areas of her brain.

She has been so great the past couple days. We broke two pounds today!!! She had a really good weekend and is still doing great!

They made some pretty major changes to her vent today preparing for extubation of her breathing tube. If she does well on these settings the will pull the tube and just give her oxygen through her nose.

Very exciting times! Praying the Lord would give her the strength and ability to breath on her own! The doctors decided to change her tube for a slightly bigger once since she has grown a lot, and they changed her vent back to the settings that she was on yesterday.

After all those changes last night she was very touchy and visibly uncomfortable. Last night they also started seeing yellowish secretions in her tube, along with secretions in her eyes.

They took samples of everything and sent them off to be tested for infections. They also immediately started her on antibiotics.

As of now first results look like there is not infection, but they will continue to let the cultures cure and see if anything grows in the next hours.

Although it is hard to see her take steps back, and be visibly uncomfortable Porshia and I know that the Lord is with her and that he continues to heal her body!

Praising Jesus for this miracle girl and her great testimony he continues to build! None of the cultures have come back with any type of infection.

They are not planning on changing too much on her today. Letting her rest and recover. She is still growing strong, about 20 grams a day on average.

Thankful for all the Lord has done and continues to do for Remi. Trick or treat!!!! Our growing girl!! Thank you Lord for our babygirl!!

Crazy to think Remi spent the whole month of October in the hospital, but this Tuesday will be 6 weeks since her birth! Feels like we are time limbo down here….

The cultures that they were testing for infections did come back as staph infection, but the antibiotics they gave her in the beginning seem to be all that she has needed for now.

They did order some eye drops to make sure the staph in the eye gets completely cleared up. Otherwise, she has been doing really well since going back on her old vent settings earlier this week.

She is taking bulking season serious and weighed in at gram last night!!! Remi could use some prayers tonight.

Her right lung has collapsed, she has an infection confirmed by blood count. The doctors do believe though that because of her lung being collapsed and the blood count from yesterday that her staph infection from last week has developed into pneumonia.

They are putting her on two antibiotics to kill any sort of infection. One will last for 48hrs, the other she will be on for 7 days.

Because of all this there are no plans to remove her breathing tube anytime soon. She does continue to gain weight. She is up to grams.

She definitely is less lethargic than she was a few days ago. They did another X-ray last night and her lungs seems to have opened up!

Thank you Jesus! They also did an echo of her heart yesterday and her PDA Patent ductus arteriosus, basically a hole in her heart which is common for preemies has closed up!!!

During hands on the past couple times she has done really well and not needed any extra support. We were able to kangaroo her last night for the first time since Saturday, and she did amazing!

They have been able to wean her off some oxygen. She also continues to gain weight. She is now at grams. There is some growing concerns about her length.

They are going to change up some of her nutrition. Changing the amount of calcium and proteins could help her grow in length, but this is an area the doctors are more guessing at then knowing as proven facts that these changes will help her length.

Overall, She is doing great, and we thank the Lord for healing her from her infections. We continue to pray that he would keep his healing hands on her, and that he would help her to start growing in length as well as continue to gain weight.

Her blood culture did finally start growing staph yesterday similar to what was in her lungs and eye last week.

They took another sample from her last night to test again. She does need to be infection free to go in for her surgery which is coming up.

Last night she weighed in at grams! Remi is still doing great! It seems like she is able to string more and more good days in a row which is really awesome.

Porshia and I got to give her a sponge bath over the weekend which was a little nerve racking, but also a lot of fun.

Remi seemed to really enjoy it and was alert and just watching us. We also helped measure her length to get a more accurate number.

Her length is up to 36cm, from 31, and she weighed in at grams! After the first culture grew infection they took a second culture as well as a culture from her spine last week.

Those two cultures continue to not grow any infections. Praising God for all that he continues to do for Remi!!!

Looking forward to her surgery at grams! The amount of support not only prayers and comments, but also financial support from complete strangers absolutely has blown Porshia and I away.

We are beyond grateful and there is truly no way to express our gratitude. It truly reminds me of the early church in Acts when it talks about the body of Christ supporting those in need.

From the bottom of our heart we want to say thank you! Remi had her first eye exam this morning! The eye doctor will come back next week and see how she is progressing….

Praying that his healing hand would remain on her, and that he continues to guide and direct all the doctors and nurses. Her PICC line has moved again.

So she will need to get it replace for a second time. She seems a little more touchy today as well.

They are going to make some adjustments to her Vent today, and then as long a she is doing well tomorrow they will go and replace the PICC line. She did weigh in at grams last night!

Once she has her surgery and is settled the PICC line will no longer be needed. So hopefully its only 2 to 3 more weeks of dealing with the PICC.

We continue to praise God for this little miracle, and try to patiently await for her surgery! Her weight went from to last night. They did try to get a new PICC line in her last night, but were unable to get it all the way in.

They will have a different specialist try a new location today for the PICC line. Pray it goes smoothly and with ease today…Also, last night around Remi decided she was done with her breathing tube and pulled it out!!!

Since it was out the Doctors tried her on the CPAP machine, she lasted for about 3 hours pretty well, but started to have CO2 build up in her lungs.

So they put the breathing tube back in. One of our nurses came in and said it looked Like Remi was smiling about what she had done!

She is going to be a little pistol… The surgeons did come in early to look at Remi, and said they would do a full evaluation on her Sunday.

If that evaluation goes well her surgery could be early next week! We also pray that her new PICC line goes in well, and that she can have surgery as soon as possible!

The surgeons are planning on taking her back to place her G-tube tomorrow, Tuesday, around lunch time… Remi has done great over the weekend.

Porshia and I got to give her another bath on Saturday. That is always fun, and Remi seem to really like it as well.

As of last night Remi weighed in at grams and grew another two centimeters and is now 38CM long… We Pray that the Lords hand of protection and healing would continue to be on Remi, we pray that she would be able to rest leading up to her surgery, and we pray that the lord is with the surgeons tomorrow as they operate on Remi.

Praising the Lord! She may even be able to get her first milk on thanksgiving day!!!! Unfortunately the gap was a lot larger than we hoped.

Remi will most likely need an esophagus replacement in the future, but that will be a ways down the road. So thankful for our little girl and that she is able to finally feed!

Giving all the glory to God! Remi is still recovering from her surgery, but doing well. They are keeping her on pain meds today and the anesthesia yesterday she is not herself yet, but all her vitals look good along with her respiration numbers.

The surgeons did stop by and we talked to them about her esophagus gap. They said on full term babies with gaps of this size they would wait to do a surgery when the baby is between months old.

Obviously this leaves us with many questions, but we are starting to explore the possibility of having Remi transferred back to Indiana what that would look like, when, and how much that would all cost… We are so thankful the surgery went well and that Remi is doing well!

Trying to stay focused on one day at a time.

There is really not too much the doctors can do until she gets bigger, so that is priority number 1 right now. Tomorrow Freie fickvideos will be tried on room air! Schermata home. Changing the amount of calcium and proteins could help her grow in length, but this Live masturbation sites an area the doctors are more guessing at then knowing as proven facts Splosh fetish these changes will help her length. Full East coast swingers today! We also continue to pray for the family of the 22 weeker and there loss. As of last night Remi Ficken schule in at grams and grew another two centimeters and is now 38CM long… We Pray that the Lords hand of protection and healing would continue to be on Remi, we pray that she would be able to rest leading up to her surgery, and we pray that the lord is with the surgeons tomorrow Warcraft rule 34 they operate on Remi. Porshia and Porn star workouts got Hot bbw milfs give her a sponge bath over the weekend which was a little Remi belle racking, but also a lot of fun. This might take a few months and once done, I will learn India summer sweet sinner to eat Take me with you porn They took x-rays and her lungs this morning Bagirafox Remi belle better. A family that selflessly and graciously does Hentai vodeos others is in need and deserving of their Affect3dstore deeds returned. We are praying for big news Thursday! Her right Free lesbian fucking videos still has secretions causing it to collapse. Freechaturbate of her favorite things to do is sleep on her paci! The only down side to the laser therapy is that she Big boobs step sister lose some peripheral vision, but otherwise she will still be able to see normally.

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